Ella's Race for a CURE - June 11, 2016
Welcome to the First Annual Ella’s Race for a CURE!!
Event: 5K Fun Run/Walk to benefit Citizens United for Research in Epilepsy (CURE)
Saturday June, 11th 2016
9:00 am – Sign In
10:00 am – Walk/Fun Run starts
Please click on "Donate Now" to register for the fun run/walk, or donate to our event. If you are running or walking, you may also sign up multiple walkers/runners. Just follow the prompts and add all the names and t-shirt sizes!!
Location: Bemis Woods South, Western Springs, IL (Enter to the north coming off Ogden, west of Wolf Road, East of I-294)
Refreshments will be served following the conclusion of the walk/run. There will be also be prizes!
First off, thank you for coming to visit our site! That beautiful little girl who’s picture is scattered around is our 6 year old daughter Ella, and we’re raising money in her honor to help support research in epilepsy. Ella was first diagnosed with epilepsy days after her first birthday. Since that day we have tried approximately 15 different medications, special diets, prolonged hospital stays, surgical consults, second/third/fourth/etc. opinions all in hopes of bringing her seizures under control. Unfortunately she still has frequent seizures that, when combined with all the medications she takes, have significantly slowed her development. Yet despite the seizures, meds, hospital stays, blood draws, therapy appointments etc. Ella’s indelible spirit remains untouched. She continues to be our driving force, attacking each new challenge with a smile. To learn more about Ella, please visit www.CUREepilepsy.org/stories/Ella.
Unfortunately epilepsy’s reach extends far beyond just Ella, affecting 3 million Americans, with 200,000 more cases being diagnosed each year. Approximately 50,000 deaths occur from seizures and seizure related causes in the U.S. each year. Citizens United for Research in Epilepsy (CURE) is the leading nongovernmental agency fully committed to funding research in epilepsy. CURE funds research grants for young and established investigators around the globe, and we believe these are the people who are going to be able to someday CURE our Ella. Finding a new and novel treatment and changing technology is currently our only hope for Ella to become seizure free. CURE is constantly at the forefront of the epilepsy research community and they are also very fiscally responsible with all the contributions they receive. We are proud to be volunteers for CURE, with Blake also being a newly elected Board Member. We are very passionate about this cause, and believe CURE is the best agency out there to help us and Ella.
For questions about the run or sponsorship opportunities, please email Shalee Cunneen at firstname.lastname@example.org.
Citizens United for Research in Epilepsy is a nonprofit 501(c)(3) tax-exempt organization. Their tax identification number is 36-4253176. As no goods or services were provided in exchange for this gift, your contribution is fully tax-deductible.
In consideration of acceptance of this entry, I waive any and all claims for myself and my heirs against officials and sponsors of Ella’s Race for a CURE for illness or injury which may result directly from my participation. I further state that I am in proper physical condition to participate in this event. I also give permission for the use of my name and/or picture in any public account of this event. No refunds will be issued.
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