Welcome to My NYC Marathon Fundraiser!
Tim's Fundraiser for the NYC Marathon
When: Sunday November 3, 2019 at 9am
Where: New York
Welcome! Thanks for taking the time to visit my page. After training for an Atlanta marathon, it recently came to my attention that CURE (Citizens United for Research in Epilepsy) had a last-minute opening for the New York City Marathon. I jumped on this opportunity as quickly as I could, so I could run for a cause that is so important to me. My recent enrollment has given me a little over a month to raise money before the November 3rd race day.
I chose to reach out to CURE because I understand how epilepsy affects so many people. I was diagnosed with epilepsy eight years ago. While initially learning about my diagnosis, it quickly became apparent how prevalent the disease really is:
· 1 in 26 Americans will be diagnosed with epilepsy.
· More people are affected by epilepsy than cerebral palsy, multiple sclerosis, autism-spectrum disorder and Parkinson’s disease combined, yet it receives fewer federal dollars per patient than any of these.
· The cause of around 50% of those diagnosed with epilepsy is unknown.
· Of the top 5 chronic conditions among children and adults, epilepsy is the second most common and the costliest.
· According to the CDC, 5.1 million people in the U.S. have a history of epilepsy.
Thanks to research and advancements, many people's seizures, including mine, eventually become controlled. Sadly, many others live with debilitating forms of the disease with little relief, especially when the cause is unknown. The mysterious nature of epilepsy, coupled with treatment that is oftentimes based on trial-and-error, can leave the individual and their family with a sense of helplessness and anxiety. This is where CURE comes in. Their mission is to promote and fund patient-based research to eventually find a cure. Fittingly, November, the month of the marathon, is National Epilepsy Awareness Month: 26 miles for the 1 in 26 Americans living with epilepsy. I would greatly appreciate your helping me reach my goal by donating to this greatly underfunded cause.
CURE is the leading nongovernmental funder of epilepsy research in the world. Their mission is to find a cure for epilepsy by promoting and funding patient-focused research. Since inception, CURE has funded more than 60 million in research grants to investigators around the world and has led ground-breaking initiatives in Sudden Unexplained Death in Epilepsy (SUDEP), Post-Traumatic Epilepsy, Infantile Spasms, and Epilepsy Genetics. CURE is a 4-star Charity Navigator-rated charity with more than 90% of funds going straight back into their mission.
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