Welcome to the 4th Annual Ella's Race for a CURE!
2.6 Mile Fun Run and 1 Mile Walk
to benefit Citizens United for Research in Epilepsy (CURE)
Sunday, June 2nd, 2019
9:00 am – Sign In/Silent Auction opens
9:45 am – Opening Remarks
10:00 am – Fun Run/Walk starts
**NEW LOCATION** 500 N. Catherine Block in La Grange Park, IL. Parking will be located at the American Nuclear Society at 555. N Kensington. Street parking is available on Kensington and Ashland Avenues, as well as other neighborhood streets not on the race route.
Suggested donation: $25 per person. You may register multiple people at once. Just list all registrant names and t-shirt sizes on the donation form. **Great news! A gracious, anonymous donor has now agreed to match up to $25,000 of race registration fees and donations.**
Refreshments will be served following the walk/run.
Silent Auction will open at 9am and close at 11am. There will also be a kids silent auction this year!
Please click on "Donate Now" to register for the event and/or donate!
First off, thank you for coming to visit our site! Our 9-year-old daughter Ella has severe epilepsy, and we’re raising money in her honor to help support research in epilepsy. Ella was first diagnosed with epilepsy days after her first birthday. Since that day we have tried approximately 20 different medications, special diets, prolonged hospital stays, surgical consults, second/third/fourth/etc. opinions all in hopes of bringing her seizures under control. Unfortunately, she still has frequent seizures that, when combined with all the medications she takes, have significantly slowed her development. Yet despite the seizures, meds, hospital stays, blood draws, and therapy appointments, Ella’s indelible spirit remains untouched. She continues to be our driving force, attacking each new challenge with a smile. To learn more about Ella, please visit https://www.cureepilepsy.org/about-epilepsy/personal-stories/ella-story.
Unfortunately, epilepsy’s reach extends far beyond just Ella, affecting 3.4 million Americans, with 200,000 more cases being diagnosed each year. Approximately 50,000 deaths occur from seizures and seizure-related causes in the U.S. each year. Citizens United for Research in Epilepsy (CURE) is the leading nongovernmental agency fully committed to funding research in epilepsy. CURE funds research grants for young and established investigators around the globe, and we believe these are the people who are going to be able to someday CURE our Ella. Finding a new and novel treatment and changing technology is currently our only hope for Ella to become seizure free. CURE is constantly at the forefront of the epilepsy research community, and they are also very fiscally responsible with all the contributions they receive. We are proud to be volunteers for CURE, and Blake is also a Board Member for the organization. We are very passionate about this cause and believe CURE is the best agency out there to help us and Ella.
Citizens United for Research in Epilepsy is a nonprofit 501(c)(3) tax-exempt organization. Their tax identification number is 36-4253176. As no goods or services are provided in exchange for your gift, your contribution is fully tax-deductible.
In consideration of acceptance of this entry, I waive any and all claims for myself and my heirs against officials and sponsors of Ella’s Race for a CURE for illness or injury which may result directly from my participation. I further state that I am in proper physical condition to participate in this event. I also give permission for the use of my name and/or picture in any public account of this event. No refunds will be issued.
For questions about the run or sponsorship opportunities, please email Shalee Cunneen at firstname.lastname@example.org.
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